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Dear Incoming FDA Leadership: I Lost My Brothers to a Rare Disease. Please Help My Son.
Angelina OliveraMy 14-year-old son Ryu has a terminal rare disease. We were to travel from Texas to the District of Columbia on May 12 to attend a Senate hearing on the Food and Drug Administration budget. There, Ryu had hoped to meet our senator, Ted Cruz, R-Texas, to shake his hand, and to tell him a…

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